People Who Electronic Personal Health Record Policy - appendix

including options for Advance Directives, crisis plans, arrangements for pets, plants, bills, ...,
individual and family history
opt-in access to aggregated data
opt-in emergency and disaster access

accessible
culturally
for those with reading-related disabilities
while considering literacy and fluency
through broad-band provided in all public housing
through ensuring account-holders have current software, updated, with security measures in place

respectful
granting read-only access only to the account-holder and those designated by the account-holder, through tiered access
account-holder can edit read access
account-holder can withhold any information (aged, prejudicial)
granting write access only to the account-holder and those designated by the account-holder
providing the account-holder the ability to comment, correct and amend

input culled from CA DMH stakeholders meeting and other sources

devices

many choices for database location - personal computer, provider system, database on internet, USB key drive.  (USB drive offers the most control - owner retains custody; owner assigns read and write access - 1.1.2007)

www.peoplewho.org